As my disease worsens and I now struggle to do every simple daily task, unable to work more than a couple hours a day, and constantly inundated with symptoms, managing medications, doctor appointments, planning for long term care… etc. .. etc… etc… I find myself almost constantly wanting to Give up! For the last several months I was being hard on myself about these feelings too which was not helpful… then I realized you know what this is normal - these feelings are normal when you are living in such a high-stress, situation full of constant suffering with no foreseeable end in site.
I have learned to be very gentle with myself during these moments, and I know that they will come, but they will also go. We need to evaluate our lives and be certain we are NOT putting out limited energy into unnecessary things that are not of top value and priority in our lives… but even still… sometimes just making it through a day doing the necessary tasks of daily living will feel like too much! It is okay to FEEL like quitting, but it is not okay to quit… just take a nap, pray, mediate, stretch, breath, do some art… whatever YOUR thing is to relax and reset do that… then find your purpose and reason to carry on!!
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