I get it… ‘bad days’ with chronic illness suck… for years I spent my bad days in a misery of despair and frustration, mad at my body, mad at the world…even mad at God! … finally over time, I have made peace (for the most part) with the ups and downs of my chronic illness life and I have learned to adjust to it.
I now have TWO completely different routines planned out for my days. #1. Is the plan for when my body is at its best (baseline)… and I am able to get up, do my morning chores, get a shower, do a couple hrs. computer work, break for lunch, a cpl mores hrs. work, meditate, take a nap, cpl more hours work, then dinner, do my physical therapy, take my dog to the community dog park, shower, and then chill out with my fav. NetFlix show. Sounds like a pretty great day right?… it IS!
However, not many days go according to my ideal, most days are basically an attempt to meet that scheduled goal buts falls somewhere short… and then there are days that my symptoms are at their worst and my abilities are dramatically different! So plan #2 for my worst days looks like, get up, so as much as I can on morning chores, then rest, eat breakfast, rest, try to do more morning chores, rest, try to get a shower at least by noon, rest, eat lunch, rest, finish morning chores, rest, feed pets, do a bare minimum walk for my dog 4-5 times through the day, get dinner, more rest. On my worst days I sometimes can’t read due to eye pain/migraines, and often can’t sit-up, so I have a pre-planned basket of very light energy requirement activities to help keep myself occupied, I crochet, color in adult coloring books, have pre-planned movies or shows I want to watch saved in my phone, write to pen-pals, schedule a short phone call with a friend (if I can muster the energy), and listen to audiobooks.
Now, thanks to many years practice, lots of radical acceptance work, love, grace, and patience for my body, and a good plan, I can get through my worst days with a much better attitude, and much less physical and emotional pain!
#mito#mitochondrialdisease #chronicillness#chronicillnessawareness
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