My disease is chronic, it is life-threatening, and it is fatal…. However no doctor can predicate exactly how my condition will progress and what it will be that ultimately will cost my life, nor can they give me any idea of a prognosis.
This is both a blessing and a curse… I find it a huge challenge to keep my emotions regulated day to day, sometimes small things feel like a huge challenge… but then in times huge life things feel insignificant in compassion to my health situation.
I can do nothing but get up each morning and do my best to just show up as my full honest self, make the best of each day I am blessed to have, and do what little I can to better the lives of others… really what more can each of us do?
You are NOT alone warriors!
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