One of the most challenging things in my life with chronic illness is never being able to plan for my next day… I often can’t even plan for the next hour because my symptoms
are that dramatic and un-manageable. This makes living in this world of time-lines and schedules and plans feel utterly impossibly. I can’t have a typical job due to this, I can’t make typical plans with my partner or friends and family which often leaves me very isolated. Basically my body makes all the plans and I must continually just bow to its needs and demands. It is frustrating, it is stressful, challenging beyond challenging… but it is my life, it is just the way things are for me right now… and I am making the best of it each day.
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