This is my current reality and I know is same for so many others living with chronic illness. Due to the chronic nature of our illnesses everyday is filled with its struggles and challenging symptoms. I was recently talking to a friend I knew from a decade ago before my illness was as advantaged as it is now and told her jokingly that I’m okay I still have a couple of good days a month… I was saying it to sort of soften the seriousness of my current health state as she is a young mother of two in good health and I’ve learned through the years how scary and hard the truth can be for others sometimes.
What was interesting was her shock in hearing of my limited number of good days… she just couldn’t wrap her head around that fact that I am in serious struggle and suffering the other 28-29 days of each month… and when I step back to look at it well it is a bit shocking… I would have thought the same thing a decade ago. But in reality this is my current life, this is the state of my health despite enormous efforts daily in lifestyle changes, diet modifications, nutritional supplements, herbal medicines, conventional medicines… my body is severely challenged due to the genetic errors of metabolism I was born with. I surprisingly and rather content with life at this stage however… and if I do receive treatment someday in the future and have many more good days again, I am certain to take the hundreds of lessons learned from all of these challenging days ahead with me.
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