The exhaustion of loss of Independence!
I have been ill now for 16 years, and in the past 10 years I have had great difficulty in managing normal daily life things like grocery...
I am an author, blogger, and on a mission to bring support, love, motivation and wisdom to others living with chronic illness, disability, or any other major life obstacle. I am obsessed with self-growth, purposefully living, my pets, learning to live my best life despite chronic illness, and God.
I have been ill now for 16 years, and in the past 10 years I have had great difficulty in managing normal daily life things like grocery...
It is completely NORMAL to be jealous of other’s health as you continue to battle for yours and as your health continues to deteriorate. ...
Long term committed relationships as well all know do not come easy and take a willingness to learn, grow and work together through life...
All my fellow spoonies I KNOW you feel the pain of this one! If I had a dollar for every time I received unsolicited health advice for a...
In a world which operates on plans, and schedules by the day, the week, month sometimes even a year in advance… living in a chronically...
In a society which puts so much emphasis on our worth being connected to our personal achievements, accomplishments, and our ability to...
This is one of the most challenging thing for those of us with chronic illness to explain to those in our life… so often with chronic...
For me the weekends are THE HARDEST for my emotional health and here’s why… during the week, I feel more like the average 39 year old… I...
16 years of pain almost everyday now… I know that is just unfathomable for a healthy person to understand. This type of long-term ongoing...
Nearly everyone living with mitochondrial disease who was diagnosed as an adult has reported at least once during their odyssey for a...
The single most stressful part of my life with mitochondrial disease is NOT the illness itself, or the pain, or doctors appointments,...
In a healthy body, societal norms give us pretty good guide-posts on when in life we can anticipate needing to transition from full-time...
This is my current reality and I know is same for so many others living with chronic illness. Due to the chronic nature of our illnesses...
THIS right here is gold that I wish I would have learned earlier in my chronic illness journey… I often pushed and pushed myself beyond...
Something I have to constantly remind myself of as well as those around me is that due to life with chronic illness EVERYTHING I do all...
One of the MOST painful lessons I learned when chronic illness took over my life is that not everyone will stay! Once I couldn’t be the...
When living with a chronic illness, especially a rare chronic illness like mitochondrial disease which I battle daily we not only have to...
If you are living with a chronic progressive illness like I am… PLEASE don’t be hard on yourself when you are struggling emotionally with...
As my disease worsens and I now struggle to do every simple daily task, unable to work more than a couple hours a day, and constantly...
Since I began needing to use mobility aids back in 2010… this has been one of THE most challenging things for people to understand! Those...