Hi!  Welcome, I'am April

For years I never attended the virtual support groups for my illness, feeling like I just didn’t have time for it, or I would try it here...

11 years ago, I was diagnosed with mitochondrial disease, and told my illness is fatal, however that I also could not be given a...

The nature of my chronic illness has many times left me in very vulnerable positions needing help from those in my life in all ways,...

Something I often find myself leaning on is reminding myself in the periods of time when my health is not as strong and stable that...

In modern countries, we like to try to fix illnesses with a bunch of pills, we like to try to keep illness sanctioned from our lives…...

It is easy to feel alone, outcast, forgotten, like an outlier, while living life with chronic illness, especially when everyone else in...

There are days when I first wake up in the morning and for a brief moment I forget that I am still sick… how I long for the days when a...

THIS right here! One of the most challenging parts of my journey with this rare mitochondrial disease was understanding for MYSELF ho my...

when chronic illness struck me at the age of 25 while I was in college, it seemed all my goals and plans were crumbling around me. After...

Most people and medical professionals seem to have a very narrow understanding of how a person’s emotional state can negatively impact...

Living with a chronic illness often means life is very unpredictable and far from routine! A healthy morning routine, a work routine, a...

I understand everyone has their own ways of dealing with things and getting through things in life, and I am actually a HUGE advocate for...

I know people truly mean well… but it is always a trigger-point for me when I see someone for a few brief minutes and they say how great...

Some chronic conditions are not LINEAR… it is hard for people to understand… but conditions like mine (mitochondrial disease) are VERY up...

Christmas party… 1st one I had been invited to in years, because I have been so socially isolated by illness. I had to spend the entire...

Our human lives opposite on routines and schedules. Everything from the scheduled days our trash is due to be picked up at home, or the...

I have a fiercely independent spirit, I left home and moved to a foreign country at the age of 18 with nothing but myself and my cat! I...

Socializing is the thing I miss most of all the things I have lost due to my chronic illness! It is so painful and hard for me every...

People judge, it is just a fact, it is what it is, even when we don’t meant to, we all judge each other all the time. I have found this...

At one point I went nearly to years without seeing a single doctor despite having a serious medical condition. This was not due to my...